Hysterectomy?

This section is for women who are or have dealt with reproductive cancer or hysterectomy.
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This section is for women who are or have dealt with reproductive cancer or hysterectomy. WOMEN ONLY please. Men may use the Reproductive cancer & Hysterectomy (husbands) forum. To post in this section you will need to subscribe to a group – see viewtopic.php?f=34&t=41250
ghostrider
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Hysterectomy?

Postby ghostrider » Thu Jan 28, 2016 2:05 pm

I'm posting for my DW, NotaPrude, who rarely posts here, but does read the forum.

We are seeing a new GYN tomorrow because of extremely heavy periods. Last month she collapsed on the floor of the bathroom at the gym the day before her period started from the cramps. She has PCOS and insulin resistance, but is young - 34, and stays in good shape to minimize the PCOS symptoms. However, the periods have gotten worse and worse the past 4-5 months.

Her BFF just had a hysterectomy because of lifelong endometriosis, and has self-diagnosed my DW with the same. So my DW is looking forward to a possible hysterectomy, hopefully keeping the ovaries. Another option might be an ablation. Birth control is pretty much out as DW gets nauseated from all types of hormones, and pregnancy.

So our question is what to expect after a hysterectomy, especially regarding sex, sex drive, orgasm, etc. Currently she has a very healthy sex drive for 2-3 weeks a month and is completely closed for business about 5-6 days a month. She can have multiple O's during PIV, or from external stim, and recently learned to ejaculate. In the past couple months she has initiated a lot. In short, sex with her is great, for both of us. The anecdotes I've read about sex getting better after surgery usually seem to come from people who had a hard time with sex pre-hysterectomy. So what is the effect on young women who have a healthy drive and keep their Ovaries?

I know SP said in another thread that her Ovaries didn't completely reboot - what does this mean? Were they screwed up before the H, or because of the H?

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Re: Hysterectomy?

Postby seeking perspective » Thu Jan 28, 2016 7:45 pm

I'm sorry your wife collapsed. I once nearly fainted while driving because of the pain. It's a scary experience, and it's frustrating and really annoying as well.

The absolute best place to get information about what to expect with a hysterectomy is at HysterSisters.com. There are discussion forums, including one just for asking about options and alternatives and another one for endometriosis support. There are also quite a few articles and videos that are helpful.

For women who keep their ovaries, there should be no change in sex drive. If there is, it is often a temporary thing while the body recovers (and recovery can take around a year). It can take a while to get comfortable with sex and adjust to the new sensations.

I had my surgery in my mid-40s and had already begun to experience some symptoms of perimenopause. The uterus does produce low levels of hormones, and the removal of that along with perimenopause had a sort of shock effect on them. (That is not typical, by the way.) Most women who have surgery fairly young like your wife do just fine.

If your wife has endometriosis, she should consult with an endo specialist. Hysterectomy does not cure endometriosis, although it can provide some relief. A specialist will be best at determining the surgical approach.

If your wife has heavy bleeding but does not have endo, an ablation might be a good step to try. Many women want to skip that and go straight for the hysterectomy, but the recovery is much, much better and it isn't nearly as invasive. I am one who had great success with an ablation. (The hysterectomy was for something other than bleeding.)

Please let your wife know that she is welcome to get in touch with me at any time with questions. I am very familiar with the resources on the HysterSisters site and can help her navigate what is there.
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Re: Hysterectomy?

Postby ledgemoor » Fri Jan 29, 2016 7:12 am

Hi Ghostrider--

It certainly is possible to come back from a hysterectomy and have a great sex life afterwards.

DW had a total hysterectomy due to endometrial cancer. She lost her uterus, ovaries, and cervix. This happened post-menopausally, yet it was devastating to her.

It was a long road back, but she is in excellent health and our sex live has never been better. From the people I know and the reading I have done, it seems that women who had a good sex life before will make it back, and those who are looking for an excuse not to have sex won't. There is no better excuse than having had a hysterectomy.

That said, I would avoid the hysterectomy if possible. It was a nightmare for us. DW says she will die rather than have surgery again. If your wife has one, it won't be as invasive. And DW's experience was probably worst-case scenario. Some women have one, are back on their feet in two weeks and happy with the results. But there are no guarantees. I understand that even if her ovaries are not removed, their output may be compromised. So research that.

PCOS and most things down there are caused by abnormal hormone levels. I would try treating it hormonally first. NOT with birth control pills, but by going to a good bioidentical HRT specialist. The goal is to get her hormones to normal levels and let the body take care of itself. They will run tests on all of her body chemistry, not just sex hormones, and prescribe just what she needs.

bHRT is not just a possible way to avoid surgery. DW and I are both on it, and although we are old farts now, we have never been healthier. We almost never get sick, we've lost weight, and have more energy than we did 20 years ago.

go to a4m.com and click on Directory, or look for compounding pharmacies in the phone book, and ask for a doctor's referral sheet.

Her BFF just had a hysterectomy because of lifelong endometriosis, and has self-diagnosed my DW with the same.
It could be fibroids too.

Also, painful periods, fibroids, etc. tend to improve after menopause, so time is on your side. What age is she? 35 or so?
Everything you ever wanted in life is just outside your comfort zone (Jamie Lee Curtis)

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Re: Hysterectomy?

Postby mamame » Fri Jan 29, 2016 7:44 am

Is there a reason not to go with the ablation?

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Re: Hysterectomy?

Postby ghostrider » Fri Jan 29, 2016 1:01 pm

seeking perspective wrote:
If your wife has heavy bleeding but does not have endo, an ablation might be a good step to try. Many women want to skip that and go straight for the hysterectomy, but the recovery is much, much better and it isn't nearly as invasive. I am one who had great success with an ablation. (The hysterectomy was for something other than bleeding.)

Please let your wife know that she is welcome to get in touch with me at any time with questions. I am very familiar with the resources on the HysterSisters site and can help her navigate what is there.


Thanks SP and others. We saw the Dr today and she decided on the ablation option for now, thank God. I was not at all excited about going thru a hysterectomy.

The Dr didn't actually diagnose whether she is suffering from endometriosis, fibroids, or something else. But I think she did say that a lathroscopic procedure was the only way to really diagnose Endo.

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Re: Hysterectomy?

Postby seeking perspective » Fri Jan 29, 2016 1:24 pm

I am glad she chose the ablation. Although most women do well with a hysterectomy, some women do experience difficult and long-term complications. It is a major surgery and shouldn't be jumped into lightly. If the ablation takes care of everything, that's great. And if it doesn't, it can help her feel better about her decision if she does decide to have a hysterectomy later.
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Re: Hysterectomy?

Postby FoxluvsBunny » Fri Mar 04, 2016 3:35 pm

I hope and pray that everything goes well with the ablation. I personally have not dealt with a hysterectomy, but i have dealt with a condition that presents very similarly to PCOS for 10 years (was misdiagnosed w/ PCOS for 9 of those) (and most of the symptoms are under control now thankfully with diet, exercise and vitamins/herbs- i never dealt w/ the horrible periods, but as a teen they became irregular, and i developed other symptoms of high testosterone levels/pcos; then got amenorrhea when i went way too far with trying to "manage" my pcos and lose the weight i gained and more; and now i'm thankfully in a place of balance and and normal cycles, my only symptom is excess hair growth which i take care of, and of course the slightly funky blood work) and would be more than happy to share some resources w/ your wife, if either of you would like to pm me, i've done a lot of research on this subject area. The good news about PCOS is though it is tricky to find the right stuff to do naturally, there is so much natural that can be done to greatly minimize symptoms; it's about finding the right balance to help your body get in balance :) . IMHO first line of treatment for PCOS should be lifestyle and vitamins (because the mechanism for PCOS is often metabolic; which in turn causes the hormonal imbalance); second should be bioidentical hormones (like Ledgemoor said :))... perhaps with metformin if issues with blood sugar and metabolism are present. Sadly (in my opinion) doctors often use the pill as a first line of treatment for women with PCOS who do not want to immediately get pregnant. It has side effects, and does not address the root cause of the problem. I don't know as much about endometriosis. There is a wonderful community that I haven't posted on in a while at soulcyster.com where maybe she can find support. Blessings!
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Re: Hysterectomy?

Postby ghostrider » Wed Apr 13, 2016 7:28 pm

So we never go the Ablation done. DW went in for a pre-op Ultrasound in Feb, and they found a Polyp. The original operation time wasn't long enough, so she was re-scheduled for Mar 30, to have a hysteroscopy (little camera) and D&C. That surgery went ok, the labs came back benign, but although the Dr said recovery should be a couple days, she bled for 10 more days (starting right after her period) and is still having cramps. She went back for the post-op and the path report said she might have a thick endometrial layer and might end up with the hysterectomy anyway.

So we are pretty discouraged. She has been able to have PIV sex once in the past 3-4 weeks, which was yesterday, but has low energy, gets tired quickly, and in general is not bouncing back as quickly as she expected to.


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