Attention-women who are or have been low T

Low or no sex drive?
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Re: Attention-women who are or have been low T

Postby Unfulfilled » Tue Sep 22, 2015 1:20 pm

I guess low T on women is indeed either extremely rare, or it is checked and tested for so rarely that many woman are simply undiagnosed. It just seems odd to me that when a man has low drive the VERY first thing everyone points to is low T potential. Yet when a woman has no drive, checking testosterone levels isn't even remotely on the radar or considered. Even though the amount of testosterone even in a woman's blood is ten times the amount of estrogen.

It is just amazing how low T possibility is simply ignored in women. I have a hard time believing that more woman on this site who have made a turn around in their life sexually had not found a low T condition. Or even had it checked. I was really hopeful to have gotten more feedback to help support or deny that fixing a low T condition was Or was not successful. Although the reports above are 100% indicate getting T helped them dramatically. But it is a pretty small sample to draw any major conclusions from. But it is hopeful.

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Re: Attention-women who are or have been low T

Postby Nvr2Late » Wed Sep 23, 2015 5:08 pm

Unfulfilled wrote:^^^

Still confused.

You say you can take up to 7grs of Diaina and you are taking 3.2 grams (3,200mg).which makes sense. But then you say you take catuba 2,790 my but the recommended daily is only 2,000mg.

So are you taking more than the recommended daily amount?

Yep. I might be, and I can't find the reference from which I jotted a note that 2000 mg was a recommended dose. I have seen that you supposedly can't really overdose on it and it has other healthy properties, so I don't fret. I also don't take it every single day. More like every other day.
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Re: Attention-women who are or have been low T

Postby OldMarriedLady » Sun Sep 27, 2015 6:03 pm

Unfulfilled wrote:I guess low T on women is indeed either extremely rare, or it is checked and tested for so rarely that many woman are simply undiagnosed.

Well, testosterone is thought of as a "male" hormone, so no, it's not normally checked for women (the same way nobody thinks about checking a man's estrogen levels, since that's considered a "female" hormone). Testosterone therapy for women is still a relatively new thing and it's taking awhile for doctors to get on the bandwagon. Most GP's won't look into it - you need to see someone who specializes in bioidentical hormones. (Actually, my GP has never tested me for any hormone levels over the past 25 years, and neither did my OB/GYN, even when I was taking synthetic estrogen. My bioidentical hormone specialist is the only doctor who ever tests my hormone levels and that's only once a year.)

Also, a woman needs to be doing research into why her libido is low or non-existent to learn about the possible treatment options, and that usually only happens when she's concerned about it herself. I hadn't heard about low testosterone being a possibility until I started trying to find reasons why my libido was so low. I first looked into it way back in 1997 (before the interwebs when I had to go to the library or Barnes & Noble and read medical books), and I could only find one doctor in a huge metropolitan area who would consider prescribing testosterone to a woman (this was a female doctor). As I mentioned before, 18 years later there are now only 5 doctors in this same metro area who might prescribe testosterone to women. :?
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Re: Attention-women who are or have been low T

Postby Unfulfilled » Sun Sep 27, 2015 7:30 pm

I know testosterone is considered a male hormone. But the fact is that even in a woman there is TEN times the amount of testosterone than estrogen. So why doctors won't even consider testing for it makes zero sense to me.

You are right that all my study is for study and conversation, but if DW is not interested then I may as well talk to the wall. But I need to get the information none the less or this will never get address for sure!

At another medical forum a woman who has had this issues stated that the testosterone level in a woman is relatively constant thru her cycle. But I have to confirm that. With DW level being virtually immeasurable than that would explain a lot.

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Re: Attention-women who are or have been low T

Postby Nvr2Late » Wed Sep 30, 2015 1:41 pm

Doctors respond to consumer pressure like any industry. Until women begin to connect the dots between lack of testosterone (and for that matter, adrenal fatigue, estrogen dominance, hormonally-based BC that kills libido....) and demand consideration of hormonal imbalances as issues, mainstream medical doctors aren't aware of it, and aren't going to open that conversation.

Ever notice how pharmaceutical commercials always include "Ask your doctor if ________ is right for you"? :wink: 'Cause it works.
Women need to bring this up with their doctors, but only after they have educated themselves so they know when the doc blows smoke at them or ignores them or whatever. When I ask my doctors about a change in my treatment, I generally already know what sort of answer I am looking for.
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Re: Attention-women who are or have been low T

Postby JEM0121 » Mon Sep 11, 2017 7:20 pm

I am a newbie to the board and I realize this is a very old post but in the future maybe it will help someone else.

I was told by my GP that I had low T back in July of 2016. I guess I'll back up a bit. Prior to that (probably around 18 months or so) I started having some anxiety. Panic attacks. Not sleeping well (I could STAY asleep, I woke numerous times during the night). I had been going to the gym 4-5 days a week or the last 8 years but started noticing I was getting tired easier and not really seeing much progress at the gym. As the months went on the panic attacks increased to the point I was in the ER twice thinking it was a heart attack. They did tons of tests and blood work and said "Its anxiety" and discharged me. Husband and I were barely having sex. I didnt want to be touched. We werent communicating. I woke up every morning in tears because I was having to deal with a new day. I started seeing a therapist. Weekly therapy wasnt giving me much progress.

In July I decided I couldnt take it anymore and made an appt so see my GP and ask him for an anti depressant. He listened to everything I just mentioned above and said he wanted to do some blood work. Specifically hormone testing. I looked at him like "huh" I'm not going through menopause. He said I think its your testosterone. :o So he checked my B-12, Vit D, Iron, Thyroid, Testosterone, Estrogen and the "standard" bloodwork as well. He did give me and anti depressant because I was in bad shape (crying through the appt) at this point in the journey. My only requirement was something that didnt cause weight gain and decreased sexual desire (we were already having enough problems in that dept) He gave me samples of Trintellix to start.

A few days to a week later I went back to see him about the results. I didnt even have enough testosterone to register a lab value, my B-12 was low and my Vit D was low. He started me on B-12 shots immediately (I do them at home myself now), and a prescription or Vit D. The testosterone we talked about my options. Since insurance will not cover HRT, it would be out of pocket. I decided to see how I felt just with the anti depressant and the supplements. I did notice that I felt better. I was sleeping. I wasn't having panic attacks that kept me home much of time. But I wanted to see if the testosterone helped even more. I chose to do the hormone pellet---and a very long story, still long--It is the best thing I've ever done.

It has made a TREMENDOUS difference in my life. It is absolutely worth every penny. ($350 every 5 months for me)

I would encourage anyone that is having lack of drive, depression, energy issues to ask their doctor for hormone testing as well as B12, Vit D, Thyroid....they are not your "typical" tests and most doctors won't even recommend it.

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Re: Attention-women who are or have been low T

Postby One-woman man » Mon Sep 11, 2017 7:29 pm

Wow! Thanks for sharing. That is amazing. So glad you are doing so much better! In what ways have things improved?
Are you still on anti depressant?
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Re: Attention-women who are or have been low T

Postby JEM0121 » Tue Sep 12, 2017 8:17 am

Thanks for the welcome!

As far as improvements, therapy DEFINITELY started helping. It was like everything I had been TRYING to work on before just started "clicking ". I just felt so horrible before, that even though I was TRYING it just wasn't helping much.

I have been much much more willing to work on intimacy issues. Because the DESIRE and drive is there. It took working past some hurt feelings and communication issues as well, but therapy was helping me with that. We went from being intimate probably 3-4 times a month to 3-4 times a week now.

I am still on the Trintellix (AD). My doctor and I discussed it and decided since I still had things at home we were working on and other stresses we'd give it a year on the 10mg and re-evaluate. I did see him this July and he asked what I wanted to do about staying on them. I decided I am feeling GREAT now. No side effects from anything--that I would like to continue them for another 6 months. The wonderful thing about my doctor is for last
14 months-he's been giving me samples of the Trintellix. I go on and pick up a month or two worth of samples at a time. For anyone looking for an AD that doesn't cause weight gain or have sexual side effects (well for most people it doesn't) I have had success with this one.

My hope for our marriage is to learn to spice things up. Be open more about talking about issues or what we want.

Edited to add--I was only 43 last year when we started this journey. So even women in their early 40's can have hormone problems.

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Re: Attention-women who are or have been low T

Postby Unfulfilled » Tue Sep 12, 2017 3:25 pm

Wow. Itey will be two YEARS ago tomorrow that I stsrted this post.

And still today DW has done NOTHING about following up with hormone treatment (outside thyroid). To be fair, she has had some other health issues she has had to deal with and still dealing with over the last year.

The thing that ticks me off most is the MAIN complaint by DW is inability to get good sleep.m and that is a common symptom of somen weith low T. And the fact that of three tests for T levels, teo of them were BELOW the bottom of thr rsnge, and the third was at absolute rock bottom zero percent of the range.
So she has several symptoms, one of which is lrobably her biggest gripe in her life. I have show. Her and she has read articles that this is a symptom of low T, and with the blood tests, she still has done NOTHING to seek help. And she still struggles with sex and sex drive.

Also to be fair, DW DOES provide sex so she is not a traditional "refuser". But her lroviding sex is clearly a force of will and deliberate attemlt. And there appears little or nothing that would indicate a genuine desire to realy "want" to have sex. Rather she knows it ks important so she does the deed.

It makes me sas as I see her sucfer from other symptoms that are low T related, but she no matter what I bring up abkut it only beliwves that my only interest is "to get more sex". Which is not completely the case. Sure I want more and better sex. But I would like a happy, healthy wife.

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Re: Attention-women who are or have been low T

Postby JEM0121 » Tue Sep 12, 2017 3:56 pm

My husband did let me decide whether or not I wanted to go forward with the hormone therapy-but I was ready to do it because I just wanted to feel my best. I cannot even begin to describe how HORRIBLE I felt when I finally saw my doctor. I wouldn't wish that on anyone. And my doctor explained the pros and cons to me. And reiterated that nothing was WRONG with me, that this is a common thing for women to experience. We talked about all of my fears going in----would I end up growing facial hair? My voice deepening? All the things we associate with male characteristics. :oops: NONE of those things have happened. As a matter of fact things I was experiencing before like some hormonal acne break outs have gotten better. Maybe some of those things are fears she has? And I can totally understand that.

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Re: Attention-women who are or have been low T

Postby justsomeguy » Wed Sep 13, 2017 3:45 pm

At least some women are concerned HRT = cancer

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Re: Attention-women who are or have been low T

Postby Unfulfilled » Wed Sep 13, 2017 5:01 pm

Getting the true facts will or can, or should overcome this false belief.

The tests that have links to cancer were all with synthetic and NOT bioidentical hormones. When using exact human hormone instead of thise synthetic or derived from horse urine, the cancer risk disappears. Yet the doctors remember the old research and not the new.

Also, how could bringing hormones that are IDENTICAL to the hormones in a woman, up to a level that is normal for women, cause cancer? If that is the case, every woman who has normal levels of hormone would also get cancer. It makes no logical sense!

Sure over-dosing and causing sustained levels of hormones well outside the normal levels, or using atrificial, fake chemical instead of the real identical hormone, well yeah, I can see how the body might reject that and react negatively.

It makes zero sense. When a person is low on vitamins, they supplemwnt to bring to normal levels, when low on serotonin, they will supplement, when low on thyroid, they supplement, when low on testosterone men will supplement. But somehow if a woman is low on hormones supplementation is somehow controversial, cancer causing and a bad thing. When ANY other medical condition when found to be out of notmal and oit of balance it is accepted, and almost expected. Except for a woman who's hormones seem out of whack!

I have read multiple reports here and other places where women who got treatment feel 1,000 times better. Not only sex and desire and drive and even intensity of orgasm. But many other overall health benefits loke reduced delression, mood, weight loss, loss of fatigue etc. Yet somehow this good news never seems to overwrite the old misinformation about the horrors of HRT for women. IF done properly with the proper hormones.

All that said, taking HRT for ONLY relief of hot flahses or something, or using HRT to bring levels out of balance or beyond normal limits. Well that just doesn't make sense to me. And will likely lead to trouble.

And as always, any hormone therapy MUST be done carefully under the watchful eye of a doctor with frequent testing of blood to ensure all is well under control.

Little known fact that by volume, women have TEN times the amount of testosterone as they do estrogen. 10 TIMES! This should tell you just how important testosterone is to a woman. It also shows just how incredibly powerful estrogen is. If having one tenth (1/10) the amount of testosterone can still make a woman a woman. Granted, the amount of testosterone a woman has is still dramatically less than an man. But still, ten times the volume than eatrogen, yet doctors have little concern it seems to the T levels in women.

Just how many woman who suffer from depression may be the result and siffering needlessly because of untreated low T?

Women suffer from depression I think four times the rate as men. Many women have trouble sleeping, have low energy and fatigue, inability to lose weight or gain muscle despite diet and exercise. All of which are common symptomsof low T. Yet most doctors will not even test, nor recommend testosterone as a possinle contributing factor. It is sad. Very sad.

How many woman, and how many marriages are suffering because of possible low T in women?

As soon as a wife comes to TMB and complains of her hisband being low energy, lathargic and having no sex drive. The VERY first thing recommended is to have his T levels checked.

Yet a woman who complains of all the symptoms of low T for women and habing her T levels checked is almost never even considered? I just don't get it!

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Re: Attention-women who are or have been low T

Postby justsomeguy » Wed Sep 13, 2017 6:37 pm

Unfulfilled, I completely agree with you!

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Re: Attention-women who are or have been low T

Postby JEM0121 » Thu Sep 14, 2017 11:05 am

Unfulfilled, I totally agree with all of that!!

I agree about doing research regarding bio indentical HRT for anyone considering it. What people don't always realize is that there are many health risks to woman that have LOW testosterone. Heart issues, bone loss (not just an estrogen issue), as well as the mental health issues. Anxiety, depression.

When I talked to my doctor about this he explained how important hormones are to our overall well being. When any of them are out of whack it affects our health, our moods, our enjoyment of life. In my opinion, anything that occurs naturally in your body is there for a reason. When people's thyroids get out of whack we don't just leave it and say "well, deal with the symptoms, that's just how things are for you now"

I guess since I have been doing the bio identical testosterone I have become pretty opinionated on this subject. :D I feel like there are probably so many women that have been just given bandaids for the symtoms----anxiety meds, or anti depressants or sleeping aids that probably in reality have low testosterone. A good and informed doctor should be checking women after age 40 when they come in with any of those complaints. I think after I told my doctor that I had been depression and having major anxiety and then said I hadn't been sleeping well (I couldn't stay asleep through the night, Id wake up every couple hours), those three things were the first tip off to what was going on.

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Re: Attention-women who are or have been low T

Postby Unfulfilled » Thu Sep 14, 2017 7:57 pm

^^^

DW cannot sleep through the night. Wakes up every couple hours. She has done sleep study to check for apnea. Turned out negative.

She has complained of being depressed. Not so much for anxiety symptoms. But DW also has three tests that show her to be below normal T.

Yet she won't (for some reason) follow up with Dr. To work on the testosterone. If I bring hormone testing she gets all upset and it goes nowhere. So now I pretty much don't even bring it up because I'm just tired of the fight. I am so sick to death about hearing her complain about terrible sleep when it has a strong chance it is because of low T. The very thing she won't follow up with. It is soooo frustrating.

My DW admits she has NEVER had a sex drive. Ever. I suspect she has been low T for a very long time, possibly her whole life. DW has never known anything different and doesn't seem to care about having something she has never experienced. She can't "miss" something she has never experienced.

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Re: Attention-women who are or have been low T

Postby JEM0121 » Fri Sep 15, 2017 9:20 am

It is possible she's had low T for years. I know my doctor told me some women start experiencing problems in their 30's.. I am not sure why, but deciding to go through with getting the pellet put in was a no brainer to me. I had felt so horrible for so long, I just wanted it to end. I would tell my husband I really feel like I'm losing my mind and going insane. :( And for any women wondering if it hurts to have them put in. Nope. I'd be surprised if it even takes 10 min. Numb you, a minute or two later they are taping you up and you are good to go. One thing I asked my doctor was how would i know when it "wore off" and would be time for a new pellet. He told me "You'll KNOW" Wow, was he right. When it wore off, within 3 days I went back to feeling AWFUL. No sleep. Crying and anxious all the time. Never was a so sure of anything being worth the money as I was the first time I experienced that. :o

(My pellet has lasted me 5 months both times. I am currently in month 3 of my 3rd pellet)

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Re: Attention-women how are or have been low T

Postby JEM0121 » Fri Sep 15, 2017 9:39 am

OldMarriedLady wrote:My story is here. Oh and here too. And here too. Seems like I give an update every year or so. :lol:



I went back and read all the threads. I am curious how it is going for you still? The thing that got me curious was when you said you had a blood test and your T was 192. My doctor had told me that with the pellets they like women to be at the 150-200 range.(My last was right around 200) Now everyone is individual but each time my doctor told me we'd go more on how I FELT than anything else. If I wasn't having a negative side effect like aggression or acne, hair loss etc....then the number was good for ME. I was wondering if maybe its different with the cream?

Do you still take the B-12 and Vit D?

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Re: Attention-women who are or have been low T

Postby Unfulfilled » Fri Sep 15, 2017 10:44 am

Concern I have with the pellet is that the dosage is fixed. So the guess has to be right and it seems like winning the lottery to get the dosage right on the first try.

Using other methkds, and then learn what the dosage is and use that to insert a pellet once a known dosage or blood level would make sense to me.

Does the need for T vary throughout the month and her cycle? If so, then a lellet with the fixed rate of delivery would not allow flexibility. Unless a default minimum pellet dose is inserted, and supplemental T by other means could be added and asjusted as necessary. But would seem to negate the benefit of the pellet.

The convenience of the pellet, and the never forget to take the medication I think would be a significant benefit.

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Re: Attention-women who are or have been low T

Postby JEM0121 » Fri Sep 15, 2017 12:33 pm

My doctor said we'd start very conservative on the dose--and for me, it was plenty. Here's my understanding of how the pellets work , your body absorbs as you need it. If you need more, it absorbs more. It is not like a time release medication so to speak.

We do blood work at 6 weeks post implant. Which is typically the "peak high" if levels are still low or you are not feeling any improvement, my doctor will do a "booster " pellet. I have just never needed one.

ETA--Everyone will use and absorb it based on their bodies needs--which is why it is not a set timeframe for them wearing off. Some women get three months, some get longer. My doctor told me it could be different each time.


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